If complications arise, that yearly price tag can soar above $1 million.

Medications to treat hemophilia cost an average of more than $270,000 annually per patient, according to a 2015 Express Scripts report.

He runs and jumps and wrestles with his brothers.'īut for the health care system, such drugs are enormously expensive, among the priciest in the nation. He's probably sometimes the roughest of them all,' she said, as she watched the 6-year-old race around a park in Yuba City, Calif., where the family lives. 'He was coddled, because his mom didn't want him to get hurt.'īut Landon's life turned out to be much different than she expected. 'It was almost like he was bubble-wrapped,' she said. Morris' grandfather had it, and she remembered hearing how painful it was. Hemophilia, a rare bleeding disorder caused by a gene mutation that prevents blood from clotting properly, is typically passed from mother to son. 'It was like having your dreams - all the dreams you imagined for your child - just kind of disappear,' she recalled.

When Landon Morris was diagnosed with hemophilia shortly after birth, his mother, Jessica Morris, was devastated. Jessica Morris prepares to inject a blood-clotting protein into son Landon's arm at their home in Yuba City, Calif.

Download cost is steep